Seeing the Destination: Share Your Vision with Professionals

From the very beginning, we need to share our vision of the future with the professionals working with our sons and daughters with intellectual disabilities. In pre-school and Kindergarten, we can talk to teachers and therapists about how we plan for our children to work in the community and build inclusive lives. And in middle and…

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Asking for Directions: Transition to Adult Medical Care

This week was a milestone where Andy signed into the doctor himself for the first time, signed his own medical forms to get some blood work done, and he produced his own insurance card and Medicaid card for payment. We’ve been working hard since he was 14 to gradually prepare him for this transition to…

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Figuring Out the Guidebooks: ABLE Accounts (A Piece of Cake to Set Up)

Back when Andy was little, it was drilled into us that we should never have assets in name … never, ever, never. Because if we did, he wouldn’t be able to receive necessary supports, such as healthcare benefits through Medicaid—which are often vital to people with disabilities. This put families and individuals with disabilities in…

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Figuring the Trip Budget: First SSI Meeting as an Adult

Supplemental Security Income for adults provides financial assistance for daily living to people with disabilities who are 18 and older and who have limited financial resources. These are some of the basic things I’ve learned about SSI: Even though you apply through the social security office, SSI is not Social Security. It’s a financial assistance…

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Guidebook: Setting Up the First Supplemental Security Income (SSI) Visit

Yesterday I called the Social Security office to set up our appointment to get evaluated for Supplemental Security Income, and we’ll be heading over to the office in two weeks. Supplemental Security Income (SSI) can help people with disabilities over 18 by giving them cash to meet basic needs for food, clothing, and housing (and children with disabilities under…

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